Euthanasia Rising Sharply in Quebec

Euthanasia Rising Sharply in Quebec

According to a major report which has just been made public, Medical Assistance in Dying (MAiD), and continuous palliative sedation have risen sharply since the end of 2015 when these practices were legalized in Quebec.

A law passed on June 5, 2014 established a Commission for End-of-Life Care to verify that the legal guidelines for MAiD are properly respected. The Commission’s current report reveals that the number of euthanasia cases has rapidly soared in Quebec over a 28-month period (from the December 10, 2015 date when the law became effective, until March 2018), although there are significant regional differences.

MAiD:  a definition very close to Belgian Euthanasia

In Quebec, for the request to be legally accepted, euthanasia, euphemistically called Medical Aid in Dying or MAiD, there are some prerequisites. The person must be at least 18 years old, able to consent to treatment, be at the end of her life following a serious and incurable illness, and enduring constant and unbearable physical pain or psychological suffering, which cannot be alleviated. These basic stipulations, as well as those relating to the practitioner’s role and the administrative verification process, are quite similar to those existing in Belgium since 2002.

However, the legal framework is different from the one Canada voted in June 2016. As in the United States, federal law not only allows euthanasia, but also assisted suicide. Moreover, it does not require the person to be clearly at the end of her life, but merely that natural death has become “reasonably foreseeable“.

The statistics recently published demonstrate that MAiD is rapidly spreading throughout Quebec, albeit with some disparities from one region to another, one medical institution to another, one doctor to another.

Over the 28-month period observed in the report, euthanasia was performed on 1632 individuals. The number per quarter doubled between early 2016 and early 2018, accounting for over 1.5% of all deaths in Quebec.

The average age for these individuals was 72, with the vast majority aged from 60 to 90. Cancer patients accounted for 78% of these cases and 90% had a life expectancy estimated less than 6 months, thus indicating that 10% were not really at the end of life as specified in the law. Those invoking both physical and psychological suffering numbered 89%. Psychological suffering was expressed in terms of existential suffering, the sense of being a burden, the loss of one’s dignity, one’s autonomy, or a loss in the quality of life…

The majority of MAiD practices were performed in hospitals, vs. 20% at home. In Belgium, euthanasia is performed at home 45% of the time vs. 40% when considering the entire country of Canada.

The Commission found that 96% of the doctors’ declarations complied with the legal requirements. The remaining 4% do not appear to be held accountable or prosecuted.

Inherent Ambiguity in Palliative Sedation

Over the same 28-month period, 1704 people received continuous palliative sedation, accounting for 1.3% of all deaths, albeit with immense regional variations. Between the years 2016 to 2017 this practice increased by 25%.

According to Quebec law, continuous palliative sedation is defined as: “Palliative care, consisting in administrating drugs or substances to a person at the end of life to relieve suffering by maintaining the person unconscious until death.”

When comparing this definition to that of MAiD, the wording doesn’t appear to be much different: “Care consisting of administrating drugs or substances by a doctor to a person at the end of life, at the person’s request, to relieve suffering by causing death “.

In both situations, the theoretical objective is similar (to relieve suffering) and in practice the final result is identical (the patient’s death). According to the report, 51% of patients in continuous palliative sedation die the same day they are sedated, and 81% die within 3 days. In addition, 78% have cancer, (as for MAiD) with over 50% declaring “refractory psychological or existential distress” in order to obtain continuous palliative sedation.

If we admit that MAiD and continuous palliative sedation are two different practices from a legal and medical standpoint, what about the real intention? Isn’t euthanasia the underlying objective for numerous cases of terminal sedations?

Extending Access to MAiD ?

On several occasions the commission’s report mentions the need to reflect on extending the law to align it with federal legislation and include cases which are currently exempted from MAiD, such as those with serious illnesses but who are not at the end of life, those with Alzheimer’s and similar diseases, and who would have difficulty expressing their consent. The Health Minister recently announced that the panel that is exploring the options for broadening MAiD practices will hand in its’ report late in May 2019.

However, an unprecedented study published in the British Journal of Medical Ethics, at the end of 2018, denounced the misuse and easy access to MAiD. The authors revealed that this was sometimes applied abruptly with little or no effort to mitigate or relieve the patient’s suffering through non-lethal medical means. Thus, some patients requested MAiD without being informed about palliative care for end of life, although this should be the preferred option.

EU Parliament Votes for a Better Balance between Work and Private Life

EU Parliament Votes for a Better Balance between Work and Private Life

On 4 April 2019, the European Parliament voted a directive to allow “parents and caregivers to better reconcile their work and family lives”. Fathers will be entitled to at least 10 working days’ paternity leave, and each parent will be entitled to at least 4 months of parental leave, including 2 months, which are non-transferrable.

This directive also establishes a new right for European employees: a minimum of 5 working days per year for caregivers, to provide care for either a relative or household member with a serious medical condition, a disability or an age-related disability.

The text also stipulates that member states must take the necessary measures to ensure that parents of children (up to 8 years old) and caregivers have the right to request flexible work arrangements in order to care for their family members.

Some countries, including France, provide better leave conditions compared to these new minimum requirements. On January 1, 2019, France set paternity and childcare leave at 11 calendar days. This leave is optional and can be taken following the 3-day birth leave or separately. Moreover, following the 2015 reform, intended to better distribute parental leave between both parents, the period was reduced from 3 to 2 years if only the mother took a leave of absence from work. The leave period is still 3 years if the father also takes one year off work. Based on the shortcomings observed in this reform, a recent report suggests reevaluating this leave policy which has penalized parents’ free choice.

France also provides caregivers with a leave of 3 months, which can be extended to a full year, but it is unpaid. In addition, a leave policy for family solidarity has been granted, to look after relatives who are seriously ill, at the end-of-life, with a maximum leave of 21 days, and includes a daily subsidy.

While this directive is intended to foster gender equality and assist parents with their family responsibilities, it also aims to address the demographic changes due to the aging European population. As specified in the directive’s preamble, informal care measures need to be implemented, to limit the impact on public finance costs.

Each EU member state now has 3 years to comply with this legislation on a national level.

Statistics Predict that French Longevity will Level Off

Statistics Predict that French Longevity will Level Off

Life expectancy has stagnated around 82.5 years in France in recent years, according to a study by the National Institute of Demographic Studies (INED).

In 2018, statistics found an average life expectancy of 79.5 years for men and 85.4 years for women, an increase of 40 years compared to the last century. According to the demographic study, since 2014, life expectancy has only increased on an annual average by only 1½ month for men and 1 month for women.

Many factors have contributed to the steady rise we observe since the beginning of the 20th century: the end of wars, the decrease in epidemics and famine, the increase in medical progress and the decrease in infant mortality. During the 70’s advances in the fight against cancer and cardiovascular disease also helped lower the age of death thanks to preventive methods, earlier diagnosis and improved medical treatment.

According to Gilles Pison, who wrote the report, “statistics for the past decade indicating this leveling-off may indicate that benefits due to the cardiovascular revolution have reached their limit.”

Any new rise in life expectancy would therefore be linked to an effective fight against cancer, which is currently the main cause of death. Mortality by cancer has significantly decreased in men and continues to fall. However, due a rise in smoking between the years 1950 to 1980, the rate of cancer in women has increased. By comparison, the Japanese hold the world record of longevity at over 87 years.

Since a current hurdle for increasing life expectancy is neurodegenerative disease (Parkinson’s, Alzheimer’s), advances in treatment could certainly contribute to improving the statistics.

Grow old and stay healthy? A recent survey of senior citizens shows “ageing well” is important for them: stay healthy with a positive outlook including an active and fulfilling social life.

How to Improve French Child Protection Services

How to Improve French Child Protection Services

Consultations on child welfare and support programs were launched on March 27 in France by Adrien Taquet, the Secretary of State for Childhood Protection, in coordination with various social service departments, associations, and professionals. Individuals who were placed in protective custody as children will also participate. 

Regional disparities account for the fact that currently all children do not have identical access to social assistance and protective measures. Six working groups will study the issue of breakdowns and disruptions in custody programs, how to improve schooling, how to best care for children with disabilities who are placed in custody, and will also evaluate the quality of child welfare services.

This deliberation comes after the French National Assembly appointed a task team on March 6, to investigate welfare and child support responsible for monitoring children placed in foster homes or institutions. The task team was appointed in response to a controversial television broadcast (Channel “France 3”), which denounced several flaws in child protection programs. Another important challenge is to develop a program for these young people to help them after their 18th birthday.

Since the child protective program is not centralized, the National Council for Childhood Protection cannot currently ensure equal entitlement rights for all children on a nationwide level. In an interview with Le Figaro, Adrien Taquet explains that “we should be examining how practices are implemented. For example, in health care, many of those on child welfare and support programs do not even have regular medical check-ups or health records and children’s’ psychiatry services are overwhelmed. We intend to launch a test program to evaluate how these children are cared for, starting at early childhood, by creating an annual subvention financed by social security. ”

In May, the Secretary of State will also announce protective measures against psychic or physical sexual violence. An overwhelming majority (80%) of these acts committed on children occur within the family environment. In addition, verifications would be implemented to control the “grey zone” of leisure time when children are entrusted to the supervision of totally unknown adults. Another issue to be resolved is the accessibility of data on known sex offenders. Discussions are also being held regarding the appointment of a referring hospital physician for cases of abuse. In cases where an infant’s death appears suspicious, a forensic pathologist could be immediately called upon.

France: Health Bill Facilitates Abortion vs. Prevention

France: Health Bill Facilitates Abortion vs. Prevention

Without any preliminary discussions or suggestions for preventing abortion, a Health Bill was adopted at the first reading in the French National Assembly, facilitating even broader access to abortion.

The amendment stipulates that within 6 months of the law’s enactment, the government must submit a report to the Parliament about the “genuine accessibility to abortion, the difficulties encountered in the various regions of France, including those due to some practitioners who refuse to perform abortions.”

This is clearly another attempt to abolish the conscience clause for health professionals. Against the government’s instruction, the Social Affairs Committee had already tabled amendments to remove this specific conscience clause for performing abortions. Although the previous amendments were rejected, this request for a report is a backhanded way of attacking the conscience clause again and of putting undue pressure on medical professionals. Indeed, as Alliance VITA reminded, France has a high rate of abortion with more than 210,000 abortions performed every year. We maintain that policy makers should be alarmed by the lack of a genuine abortion prevention policy, rather than concentrate on stigmatizing health professionals who act according to their conscience.

Alliance VITA requests that a study be carried out on the situations that lead women to seek an abortion, and on the consequences of this act, to elaborate an adequate abortion prevention policy. An IFOP opinion poll published in 2016 stated that 89% of French citizens think an abortion leaves women with painful psychological marks, and 72% believe that women should be more helped by society to avoid abortion.